Who We Are – The Team

Our Staff & Volunteers

The BANA team comprises employees at our Head Office in Chesterfield, our Board of Trustees, plus a host of volunteers from around the country who act as area support group leaders, fundraisers and area group administration roles.

Board of Trustees

Craig Stevens
Chair of Trustees

Craig is a patient advocate and medical writer/manager working in the medical communications area in patient engagement. He started his career in this space more than 20 years ago.  Craig is passionate about helping people understand complex concepts and language, particularly in the medical field. This work aims to help people truly understand the information they’re being given, so that they’re empowered to make informed health and wellbeing decisions that are right for them. Craig believes that everyone should have access to clear information. His areas of interest include medical ethics, informed consent, health literacy, AI, insights gathering and health psychology.

Craig was diagnosed with an AN/VS in 2015 and received gamma-knife treatment in 2017. His scan results since 2017 have been reassuring.

 

I am delighted to be a part of BANA as Trustee and Chair, and look forward to helping the Charity grow and evolve to support as many people as possible, in the ways they need.

Board of Trustees

James Gibbons
Vice Chair & Accountant
James is an experienced Management Accountant, having worked across a range of business sectors across three continents. His last role was as Finance Manager at a Medical Research Institute in Melbourne, Australia, where he gained a great insight into the workings of Medical Research.

 

James was diagnosed with an Acoustic Neuroma in 2016, whilst living in Australia, and had it surgically removed in October of that year. In adapting to life post-surgery James decided to leave his job and ultimately to return to the UK in 2019. He now considers himself retired.

 

James joined BANA upon his return to the UK, attending his first support group soon after where he volunteered to help with the BANA finances and soon became a trustee. After a spell away from BANA he returned to help with finances in 2023, became a Trustee again in 2024 and recently became Vice Chairman.

 

James is an enthusiastic cyclist, often to be found clad in Lycra cycling the lanes of Leicestershire, and a lifelong fan of Liverpool FC.

 

“Coping with everything an Acoustic Neuroma throws at you can be a long and difficult journey. Having other people who “get it” and can share their experiences is a great help. It is the facilitating of this that I feel is one of BANA’s great strengths. I look forward to hopefully helping make other people’s journey a bit smoother than mine has been”

 

 

Board of Trustees

Andrew Shipsey
Trustee & Treasurer

I am honoured to have joined the BANA Board as Treasurer. I currently work in the finance department at University Hospitals Plymouth NHS Trust as Head of Financial Support.

I joined the NHS as a finance graduate trainee back in 2005. In the first few years of my career I was asked to cost an acoustic neuroma procedure (I didn’t know what that was at the time), and was involved in a business case to replace linear accelerators, one of which was to have the ability to do stereotactic-radiotherapy and radiosurgery, met the Medical Director, who was to become my surgeon, about potential investments in cyberknife and gamma knife and worked with budget holders about gaining funding to support patients with neurofibromatosis II.

 

It was therefore almost fate that I was diagnosed with an acoustic neuroma in 2014. I was starting to have problems with my balance, I was never great at football but I was even worse with little to no balance, hearing – I was struggling to hear music on my headphones, I thought the headphones were broken but in hindsight it was my hearing that was not working and had gaze-evoked tinnitus. I was referred to the hospital for an MRI scan after initially being told I had water behind my eardrum.

I received a phone call the day after my scan asking me to come in. I wasn’t expecting to be called back so soon to get given good news. Indeed, by this time, with the symptoms I had, I had identified an acoustic neuroma as the likely culprit. However, I was not expecting to be told I had a 4cm tumour that was pressing against my brain stem that needed fairly urgent treatment.

A few weeks later I was having my first operation. I was advised by the consultant that it would feel like I had been ‘knocked for six’, and he wasn’t wrong. It was exhausting trying to get on my feet again but slowly it felt like I was getting better, with a huge amount of patience and support from my family. I went to see the consultant in clinic and was told that about half of the tumour was removed in the first operation, and I would need another. I had my second operation the following year. Whilst still a big operation, the recovery felt smoother second time around. In the second operation my facial nerve was bruised and I was unable to blink for a few weeks. With some rehab and massaging, the nerve regained some strength. I can just about blink now, but still have some weakness on that side – I notice a lopsided look in photos but I think we notice things like that more than others!

Due to the location of the tumour near the brainstem and facial nerve, some tumour remained after the second operation. I was listed for stereotactic radiosurgery the following year, with the aim of stopping the tumour from growing any more. It therefore came as a shock that after the SRS the tumour grew in size. I understand that this can happen with SRS, but was unnerved to know that if it did continue to grow a third operation may be needed.

In the last few years, the tumour does appear to have remained the same size. It is larger than I would like, but whilst I am still able to work and drive and largely live the life I had pre-diagnosis, no further treatment is planned. I am having annual surveillance scans to keep an eye on it.

I am immensely grateful to the NHS for saving my life and the support offered by BANA to myself and my family at a difficult time. Interacting with others on the BANA Facebook group, hearing the stories of other patients in the newsletter and picking up hints and tips have been a huge source of support.

I am looking forward to bringing my professional skills, and determination to help those on their AN journey to the BANA Board.

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Sue Falkingham
Trustee & Medical Advisory Panel

 

 

Peter Monksfield MB, ChB, FRCS (ORL-HNS), DLO, MSc
Trustee & Medical Advisory Panel

Peter is a consultant ENT surgeon with a special interest in skull base surgery and hearing implants. He was appointed at the University Hospital Birmingham in 2010 and is also an Honorary Associate Professor at the University of Birmingham. He leads the skull base MDT in Birmingham and has a dedicated acoustic neuroma clinic with hundreds of patients under his care. Peter is the current President of the British Society of Otology.

“It is an honour to be involved with BANA as a trustee. BANA has supported many of my patients with their diagnosis and treatment journey.”

Andrew Read
Trustee

Andrew was diagnosed with an Acoustic Neuroma in 2017. Then went on to have translab surgery on the 22nd of May 2017; that date will never be forgotten as it was the Manchester Arena bombing that evening; he also turned 40 in March.

In January 2017, Andrew joined a local running club; over the years, this has proved to be an incredible part of his positive recovery, from the people he has met to the confidence he has gained from fellow runners. He is now a member of the club’s committee.

Andrew took on a crazy running challenge in 2012 called 12IN12, 12 marathons in 12 months. All this to raise awareness & funds for the three incredible charities that have been there for him over the years, in his words, “ to give a little back”.

For the last few years, Andrew has volunteered for BANA on zoom chat meetings, under 35s & other meetings when needed. His positivity and outlook on life & and the will to never give up is an inspiration for other AN patients.

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Juliette Buttimore RN MSc
Trustee & Medical Advisory Panel

Jools has worked as a nurse practitioner for the NF2 and skull base (ENT) service at the Cambridge Skull Base Unit since 2010. She is co-lead for the NF2 service for the East of England/Midland region. She is the team’s lead for user and carer issues and patient experience. She has previously sat on the British Skull Base Society Council and advises various relevant charities and support groups.

Jools runs nurse-led clinics for patients diagnosed with a vestibular schwannoma post-surgery or on surveillance and is a direct point of access for patients experiencing issues with symptoms related to their tumour or treatment. She attends regular skull base MDT meetings and consultant-led clinics to provide patient advocacy and support.   Recent research projects have focused on the probability of growth in vestibular schwannoma and when surveillance imaging should cease. Her Master’s dissertation focussed on the effect of vestibular schwannoma on quality of life and argued for improved emotional support for patients with vestibular schwannoma, focusing on helpful coping interventions and virtual follow-up.

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Pooja Patel
Trustee

Pooja works in digital quality assurance for healthcare organisations and is passionate about improving healthcare quality and access to healthcare through technology. She has been in this space for several years and is particularly interested in making complex processes more efficient and accessible, ensuring that people can confidently use technology to support health and wellbeing. Pooja believes that technology has the power to transform patient outcomes and is dedicated to driving innovation in this field.

 

Pooja was diagnosed with an AN/VS in May 2023 and underwent translab surgery in November 2023. From her own journey, she recognises how personal and unique each person’s experience with Acoustic Neuroma can be.

 

“I am honoured to be a BANA Trustee and to work alongside the charity in supporting those affected by an Acoustic Neuroma. I look forward to contributing to BANA’s efforts in providing guidance, resources, and a strong community for everyone on this journey.”

Sara Crosland
Trustee

Sara Crosland is a passionate trustee for the British Acoustic Neuroma Association (BANA), where she uses her personal experience and expertise to support individuals affected by acoustic neuromas. As an adventure athlete and outdoor education specialist, Sara brings a unique perspective to her role, using her skills to help others in their recovery from brain tumours.

Sara says, “I strongly believe in the power of personal experiences and the strength we find in sharing them. I hope through my work with BANA, to offer positivity, hope, and the confidence to move forward after diagnosis.”

Through her work with BANA, Sara helps ensure patients and their families have the resources, guidance, and inspiration they need to navigate their journeys, empowering them to embrace recovery with strength and optimism.

BANA HQ STAFF

Steve Wheeldon
Chief Executive Officer

With a distinguished career spanning 40 years in the Consumer Finance Industry, Steve Wheeldon brings a wealth of experience and a forward-thinking approach to his role as Chief Executive Officer at the British Acoustic Neuroma Association (BANA) at our Head Office in Chesterfield. Since joining the team, Steve has been pivotal in managing and administering the charity, working closely with our Trustees to ensure effective governance and strategic direction.

Steve’s role encompasses the development of core strategies and meticulous budget management, ensuring that BANA operates smoothly and sustainably. He leads our core operational activities, including governance and fundraising, with a commitment to enhancing our impact and outreach.

 

 

“Outside of work, I am an avid supporter of my local football team, with my Son, daughter and Grandchildren, and love the thrill of Formula One racing”.

His passion for these pursuits reflects his energetic and dynamic approach to both work and leisure.

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BANA HQ STAFF

Lou Jolley
Community Support Administrator

Lou has over 40 years NHS experience working as a Senior Registered Staff Nurse  and the last 25 years of this as Community Staff Nurse. Lou also has  20 years experience in Bookkeeping, which she did on a small scale alongside her nursing, and she has excellent communication skills. Lou is based in our Chesterfield office, and can be contacted for help, advice or just a chat anytime.

BANA HQ STAFF

Justine Watson
Community Support Administrator

Justine graduated in 3D design in 1992 and worked for several Companies including Thames Cancer registry, and Guy’s and St Thomas’s hospital in London providing Admin Support. Justine set up her own Campervan hire business in 2016, creating her own Company Website, and marketed the business through social media.

Over the last 4 years Justine has worked as an Admin Manager for an international organisation providing training programmes for overseas Emergency Medicine doctors, and also owns and runs a small upholstery business.

 

Patrons

Brian C.J. Moore – Emeritus Professor of Auditory Perception
Patron of BANA

Brian Moore is Emeritus Professor of Auditory Perception at the University of Cambridge. His research interests are: the perception of sound; mechanisms of normal hearing and hearing impairments; the relationship of auditory abilities to speech perception; design of signal processing hearing aids for sensorineural hearing loss; methods for fitting hearing aids to the individual; design and specification of high-fidelity sound-reproducing equipment; perception of music and of musical instruments.

He is a Fellow of the Royal Society of London, a Fellow of the Academy of Medical Sciences, a Fellow of the Acoustical Society of America, a Fellow of the Association for Psychological Science, and an Honorary Fellow of the Belgian Society of Audiology and the British Society of Hearing Aid Audiologists. He is a member of the Experimental Psychology Society (U.K.), the British Society of Audiology, The American Auditory Society, the Audio Engineering Society, and the Association for Research in Otolaryngology. He is President of the Association of Independent Hearing Healthcare Professionals (UK). He has written or edited 19 books and over 600 scientific papers and book chapters. He is an associate editor of the journal Hearing Research. He has been awarded the Littler Prize and the Littler Lecture of the British Society of Audiology, the Silver and Gold medals of the Acoustical Society of America, the first International Award in Hearing from the American Academy of Audiology, the Award of Merit from the Association for Research in Otolaryngology, and the Hugh Knowles Prize for Distinguished Achievement from Northwestern University. He is wine steward of Wolfson College, Cambridge.

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Patrons

Professor Richard Ramsden
Patron of BANA

Patrons

Andrea Wadeson
Medical Advisory Panel Member
Andrea started out as a Staff Nurse (RGN) in 2001 with a period in Orthopaedics, Trauma and then community nursing before settling into Neurosurgery and Skull Base in 2006. After a period as ward sister, she commenced the role of Skull Base Clinical Nurse Specialist in 2009; the service was being built from scratch to develop this new role within the Trust.

 

Over the years, she has developed the service to encompass the needs of patients with skull base pathology including AN/VS. The service at Salford receives around 150 new AN/VS referrals per year. Andrea has set up nurse led clinics to counsel patients before surgery, follow patients after surgery and radiotherapy along with telephone clinics and rapid access clinics to identify and treat symptoms. She has been able to develop comprehensive patient information documents, local policies on the management of skull base patients and has previously held position on the council of the British Skull Base Society. She has worked with NHS England to create specialist national standards for the care of patients with AN/VS and has presented work at national and international level.  Andrea helps to run the Manchester AN/VS support group and is an outgoing Trustee of BANA, having spent 8 years in post.

 I have really enjoyed working with BANA over the last decade, initially as host of the Manchester support group, then as trustee and acting chair and, currently as a member of the medical advisory panel. It is important that clinical staff work with patient charities like BANA so we can offer our experience, support and time to improving awareness, information and access to appropriate care. The mutual benefit to me, as a clinical nurse specialist, is hearing and understanding patient and carer views which allows me to offer patient centred care and drive standards based upon what matters most to those diagnosed with acoustic neuroma/vestibular schwannoma.

Danielle Gibbons
BANA AMBASSADOR

In July 2015, I had surgery to remove an Acoustic Neuroma. Following the surgery, I was left completely deaf in my left ear and needed to rebuild my balance and redevelop the ability to walk unaided. After spending two days unconscious and a week in the hospital, I returned home to continue my recovery. During diagnosis, surgery and recovery, I was a Professional Footballer for Liverpool FC, and almost three months to the day after surgery made my debut in the Champions League. Now, I am continuously trying to share my story to help inspire people facing their life struggles.

 

I’m determined to raise awareness of brain tumours and vital funds for this incredible charity. I feel fortunate to share my journey and experiences with others affected by ANs and regularly chat with people to educate them and provide support. Had I been given a choice to have the brain tumour or not, I would choose to go through the same journey again. As difficult as it’s been at times, it’s allowed me to meet some inspirational people, share my journey to help others, and give me an inner strength that I didn’t realise I had.

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