About BANA

British Acoustic Neuroma Association CIO, otherwise known as BANA, is a Charitable Incorporated Organisation (No: 1165065) which was registered on 6 January 2016. On 1 April 2016, BANA CIO became fully live when all assets were transferred from the original BANA charity (No: 1024443).

The original BANA was formed in 1992 by a group of patients and their partners who were introduced to each other by ENT and Neurosurgeon Consultants from the Queen’s Medical Centre Hospital in Nottingham. From the onset, mutual support was this small group’s primary aim, along with providing reliable information to sufferers and to promote research into acoustic neuromas and the effects of the condition. More than two decades on, these fledgling intentions remain the charitable objectives that drive the charity forward on behalf of all those affected. 

On 2 August 1993, the founding group was granted registered charity status, but while their work was advancing it was still being administered from individual homes with limited resources. As word spread, membership grew and the community association gradually developed; linking patient with patient and forming alliances with medical professionals and other related charities. 

In 1997, a significant three-year Lottery Grant assisted BANA to move into much needed premises in Mansfield, Nottinghamshire, and to employ an office Co-ordinator. This was a major advancement and the office became a hive of activity, hosting support and trustee meetings as more people joined the association. From here on the charity became self-supporting. It has continued to employ office staff, but until November 2013 the day-to-day management was undertaken by the volunteer trustees that have come and gone; the majority affected by the condition as a patient or supportive family members. 

The change in 2013 came with the appointment of a Chief Executive Officer who oversees all operational matters and projects. The charity also employs a part-time Accounts Administrator and a part-time Membership Support Administrator. This new phase of development was a departure from previous practice, but it was undertaken to enable the Board of Trustees to give more focus to the strategic advancement of the charity’s aims, to take into account changing needs and operational methods and to reach out the most effectively to everyone requiring support in the diagnosis of acoustic neuromas. 


Our Vision, Mission and Values

Our Vision is a world in which Acoustic Neuroma is no longer a life-changing experience.

Our Mission is to be a trusted, impartial and reliable source of information and support.

 

Our Core Values are:

We are Courteous and Respectful in our dealings with others

We always respect the feelings and beliefs of others, and treat them with equal respect and dignity.

We always act with Honesty and Integrity

Our actions are honest and honourable. We never push our own preferences or opinions with the intention of influencing others.

We are Reliable and Accountable in our actions

We only commit to things we are able to achieve and never promise anything we cannot deliver. We take personal accountability for delivering our promises.


BANA’s Charitable Objects

The Charity is established to:-

a) Assist and support people who have been diagnosed as having or who have been treated for Acoustic Neuroma (Vestibular Schwannoma), and other related conditions and others affected by such conditions.

b) Promote and support research into medical, surgical and other procedures likely to lead to the prevention, early detection and successful treatment of such conditions and any such procedures assisting in the rehabilitation and quality of life of people affected by such conditions.

 

We hope our website helps you to find the information & support that you are seeking. If you have any other questions please feel free to contact us

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