Top 10 Tips on Talking about Acoustic Neuroma

10 Talking Tips about Acoustic Neuroma             

 1. Acoustic Neuroma is rare and only approximately 2 in 100,000 are diagnosed but it is suspected that many more go undiagnosed

2. It is mainly the over 50’s that are diagnosed but with improved tests many more younger people are told they have an AN

3. Hearing loss is the significant factor with an Acoustic Neuroma with the majority suffering some hearing lost. Many with complete hearing lost.

4. Most people have tinnitus which is a sensation of hearing sound in the head or ears when no external sound is present.  It can be ringing, whistling, buzzing or crackling, any sort of variation.

5. There are 3 main treatments, depending upon the tumour size location and severity of symptoms. Wait and watch, stereotactic radiosurgery or surgery.

 6. A MRI scan is used to make the final diagnosis, after careful examination of the ear, hearing and balance systems.

7. Other symptoms can be many and varied; including vertigo, dizziness, fatigue, anxiety depression and cognitive impairment, in some cases facial palsy

8. As a member of BANA you can access local support groups, listening ear project, information sheets and leaflets quarterly magazine, social media page Medical advisory panel, volunteering opportunities.

9. Family, friends and work colleagues can help a person with an AN by being patient and understanding.  Provide or offer support.

10. The British Acoustic Neuroma Association is the only national UK charity that is dedicated to supporting people and their support networks with an AN. e-mail admin@bana-uk.com for more information

 

                                                                 

 

 

 

 

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