The British Acoustic Neuroma Association (BANA) is committed to protecting your personal information. This Privacy Notice explains how we collect information about you, how we use the information we collect and how you can tell us if you prefer to limit or change the use of that information.

If we need to change our Privacy Notice, we will do so on this page. This Privacy Notice was updated in January 2018 and will be reviewed again in May 2018 in line with the General Data Protection Regulation that came into force on 25th May 2018.

Your Consent

At BANA we collect information using the lawful bases of Consent – this means an individual has consented to provide necessary information to ensure that we can offer the best services provided by BANA to individuals and will process personal information for this specific purpose.

When you use our website (which includes social media or any other online services we may offer) and you provide personal information, we will seek your consent to collect and use your information in accordance with this Privacy Notice.

When you provide BANA with your personal information it will only ever by shared with third parties for the purpose of fulfilling our membership promise or other services you have requested. We will not share personal information with any other business or charities.

Where you submit personal information to us (information about you or other people in your legal car or where joint memberships exist), you confirm you have given all the necessary permissions and consents to do so and that you have read and agreed to the terms in this Privacy Notice.

What Information we collect and how we use it

Where we process your personal information it will be held by BANA. When you pay a membership fee, make a purchase, we will need to know some details about you such as your name, contact details, email address, phone number and payment details, these details will be used to ensure that you are provided with the information you expect from being a member of BANA (or should there be a problem with a purchase). We may also require information about other people associated with this membership. For example joint membership. If you contact us and offer the information of others we may also keep a record of this.

We collect this information to help us to process your request, and to help us to deliver services you have requested and to send you other service related communications such as quarterly magazines and emails.

We will only retain your personal information for as long as is necessary in order that BANA can fulfil its obligation to you as a member of the organisation, and to meet our obligations for reporting where these apply (retaining financial records for up to seven years). When your information is no longer required (when you cease to be a member of BANA) we will delete it securely, immediately and within one calendar month of you ceasing to be a member.

Other uses of our website

There may be other ways we collect and process your information when you visit our website

  • We may invite you to complete optional surveys for research purposes
  • We may collect details of your visits to our website (including but not limited to: traffic data, location data, web blogs and other communication data, information about your computer, including where available your IP address, operating system and browser type) and the pages that you access so that we can improve the website and your experience of it.

Our website may link to external websites operated by other organisations. If you click on these links you acknowledge that you will access their websites and will be subject to those websites’ own terms and conditions and privacy policies.

How we protect your information provided to us

We follow good security practices in processing and the storage of information which you provide us with. We monitor your information where practical to check that it is accurate and up to date. Staff and volunteers may have cause to use the information to fulfil any enquiry, but may not have access to other information you have provided.

The British Acoustic Neuroma Association (BANA) will never ask you to send online passwords, credit card or bank details by email.

The data collected from you may be transferred to, and stored at a destination outside the EEA (European Economic Area), it may also be processed by staff operating outside the EEA. By submitting personal data you agree to this transfer, storing and processing. We will take all reason steps necessary to ensure that your data is treated securely and in accordance with this privacy policy.

Your responsibilities

We will work hard to ensure that your personal data is accurate, up to date and well protected; but to ensure it remains secure BANA asks that you take the following steps to help protect your data:

  • Do not click on suspicious links that appear to be from The British Acoustic Neuroma Association or BANA. If in doubt do contact us.
  • Never respond to an email ‘from’ The British Acoustic Neuroma Association or  BANA which asks you to send  your online password, bank details or credit card information (we will never ask for this)
  • Do not use the same password for all your online accounts. Secure your online accounts with strong and unique passwords.
  • Update BANA if your details change so that we can ensure we have the right information for you.

Disclosing information about you to other organisations

We may release your information to the police or other authorities where we have a legal obligation to do so.

We may provide anonymous statistics to reputable third parties for the purpose of analysis and to support vital research. However, these statistics will not include any personal information.

Managing information held about you

You may, at any time request copies of the information we hold about you and ask us to correct or delete that information or to use it in a different way. For example to opt-out of receiving emails or newsletters.

If you request copies of the information we hold about you we may need to obtain proof of identity from you, this information will be provided within one calendar month of your request, free of charge however if multiple requests are regularly made an administration fee of £10.00 may be applied each time.

Contact us

The British Acoustic Neuroma Association (BANA) is happy to receive your feedback and any questions you may have. To contact us about this Privacy Notice, to obtain copies of your personal information or to ask that we update, delete or change how we use your information please contact us:

Tel: +44 (0) 1246 550011

The British Acoustic Neuroma Association
Tapton Innovation Centre
Birmington Road
Derbyshire. S41 0TZ

Registered Charity Number 1165065
Registration Number ICO ZA101592

We comply with (PCI DSS) Payment Card Industry Data Security Standards in the handling of credit and debit card transactions and undertake an annual audit of our processes to remain compliant.